Guest Book

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Dizzylore62@yahoo.com on September 1, 2009 at 11:42 AM said:

My Meniere's 'Twin' sent me a note about this website. I'm so excited to be able to have something tangible to hand out. Not that any of couldn't recite symptoms in pig latin; but giving someone a card, they'll run across it now and again and be reminded that tey know someone that has been blessed with this disease. I've written a poam about Meniere's, may I e-mail it to you? Lorelei L Patton

Tom Woodville, FL on August 31, 2009 at 06:18 AM said:

I suffer from a Vestibular Disorer and am looking forward to my wife an I wearing these bracelets to start conversations regarding these "invisable disorders."

Janice (Scarflady) on August 29, 2009 at 09:41 AM said:

Thanks Danny for managing this store. What a blessing!

KDC on August 19, 2009 at 08:14 AM said:

I have read the book musings from the invisible from cover to cover. I laughed I cried, and I laughed again.

Such power, there is in words.

It sits next to my bed and I am sure I will cover to cover read it again many times.

Thanks

Danny

Sparrow on July 1, 2009 at 05:09 PM said:

Danny ~ Your website has really grown and I am soo proud of you and all the hard work you have done here ((( hugs ))). Thank you for being here for all of us !!!

Debbie

Marlene on February 11, 2009 at 08:00 AM said:

Hi, I found your site through a link on www.menieresinfo.com, and I am so glad I did! It is great to see that people like us have some encouraging news and information about this rare disease. It is very hard to deal with this on a day to day basis, and I have purchased your dvd to help my family and friends better understand what Meniere's feels like. What a breakthrough and inventive way to help sufferers show what it's like to others. Kudos to you and please continue the research! Marlene California, USA

Dana Davis on July 31, 2008 at 11:20 AM said:

I am the award-winning author of the teen novel The Mask of Tamirella. I work, play, and do generally what everybody else can do but I have Meniere's Disease. In March of 2003, after bouts of vertigo, tinnitus and other symptoms that left me exhausted, occasionally in tears and generally stressed out, I was finally diagnosed. The diagnosis was actually a relief, since I found out I wasn't dying, but at the same time I went through the old "why me?" scenario and had myself a nice pity party. Of course, that didn't last forever and I had to get on with my life.

My husband has been a wonderful support during the ups and downs of this disease. In fact, just recently, my ENT told me that I might be in remission as I haven't had a vertigo attack in a year and a half. I did a little jig after I left her office. I'm so glad to feel almost normal again. Of course, I still have the tinnitus--that will never go away. And you won't get me on a boat, even with the most effective motion sickness meds, because they don't work on water. I also have slight hearing loss. But my hearing was above average to start with so even with the hearing loss, I'm still in the normal range. I consider myself very lucky.

Thank you for all the work you are doing for Meniere's sufferers. We need a cure!

Heather, Palmer, Alaska on June 10, 2008 at 12:09 AM said:

Hi - I found your site while doing some research on mold allergies. I am wondering if there is a connection as I get extremely dizzy along with itchy, watery ears. Some days I can't even function - it is hard to think, remember things and focus on or read things. I battle exhaustion constantly. I also get occular migraines. The first time I dealt with this(2000), my doctor thought I had an inner ear leakage and operated to "patch" the leak, but it didn't cure the problem. I then moved from my home which we found had severe mold issues and after a few months, my dizziness subsided. It would reoccur periodically, usually at times of stress or exhaustion. I then went symptom free for about a year. It has come back in the past couple of months, but I attributed it to living in another home which had moldy duct work. I moved three weeks ago, but am still fighting dizziness, itchy ears, exhaustion, etc. Is this possibly the same thing? I notice my left ear starts the whole process off when symptoms begin to show and has shooting pains inside and itchiness along with fluid build up. My email is mjburnem@yahoo.com. If you could email back to me to let me know what you think, I would greatly appreciate it. Thank you, Heather Burnem

Danny on February 4, 2008 at 03:54 PM said:

Welcome to the Store!